Bloody Lymey

A Blog About Living with Lyme Disease

Awesome article!

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“7 Lyme Facts That Could Have Saved Me” – Found on Youtube

The person who made this video asks to share it. The parts where there are words scroll a bit quickly, but it makes some awesome points. So … spread the word!

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Lyme as an STD Revisited ….

I have heard it may be an STD in the same vein that Syphilis is, since both are spirochetes. My doctor dismissed this, and having perused the internet I did not see anything very credible to suggest otherwise.

But I thought I would post some links I found in a Lyme Group I belong to on Facebook (Christian Lyme Disease Support …. that’s what they’re called. However, I have not seen much Biblical things posted so don’t let that deter you from joining).

Here is one suggesting it may be contracted orally (through French kissing): http://www.martinimplants.com/oral-spirochetes.php

And another from a doctor saying it has been detected in semen and vaginal fluids: http://www.canlyme.com/sex.html

Some other sources (even some that are ambivalent about whether or not it could be sexually transmitted) suggest a large amount of co-occurring in sexual partners/cohabitants.

This contradicting information – including whether or not I continue to carry the bacteria after treatment – is dizzying. I just want to be responsible and do the right thing. Both my doctors maintain that I no longer carry it – but what about that bad Herx I experienced when I was on antibiotics for strep?

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OLD Lyme Disease …. Iceman Is Thought to Have Had It!

This is a fascinating article, suggesting Lyme is nothing new:

http://news.discovery.com/history/iceman-mummy-lyme-disease-120228.html

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Positive Attitude = Better Days with Lyme Disease

I had to repost this:

http://www.marcandangel.com/2011/12/11/30-things-to-stop-doing-to-yourself/

Thirty things to stop doing to yourself.

I think with chronic illnesses, it is natural to feel jealous of people who have good health. I think it’s natural to fixate on blame – blaming doctors for not finding it faster, ticks for carrying their biological warfare ….. It’s easy for us to reject new relationships because we don’t feel like we’re as much fun. It’s natural to feel sorry for oneself now and then. Sometimes we feel compelled to explain ourselves to other – why we “forgot” something or why we were unable to adequately complete an obligation of some kind. We try to “make” people understand. We look pretty good. We’re not skinny or wasting away. So we chirp on and on about the fatigue and weakness or pain or whatever the malaise du jour is.

This post, thirty things …. if I could do every single one of them on a given day, my life would be outstanding. The closer I come to doing all of these things, the better I am and the better my coping skills are.

Also, for this recovering alcoholic who is in AA – it’s a layperson’s list of a remedy for “stinkin’ thinkin’.”

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Celebrities with Lyme Disease ……..

Another famous person with lyme is author Amy Tan: http://query.nytimes.com/gst/fullpage.html?res=9B02E4DA1739F93AA25756C0A9639C8B63&ref=amytan

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The 99% – Occupy Lyme Disease

I was thinking about the whole “we are the 99%” thingy.  This blog is based on my chronic illness:  chronic Lyme disease.  In the past year period, I have been bounced from health insurance policy to health insurance policy like four times.  I’m again in “deductible” land and I haven’t finished paying off my specialist for my last visit due to a deductible.  Mercifully my co-pays on my meds are manageable.  

My symptoms have been up and down and there have been some changes that make me think I ought to see the doctor again. I don’t know if Lyme has upped the ante or if there’s something new to concern myself with.  Lyme disease has shown me it is like a house of cards with causing auto-immune things.  From a strange sensation in my feet akin to jumping burning embers to the pressure in my head to the sudden changes in eyesight throughout the day to episodic incontinence …. I am worried.  I have a $500 deductible and Christmas is coming.  My bout with unemployment this summer set me back a little bit with my savings.  I can keep my head above water, but this fork in the road with my health and finances makes me think of other people in other states.  

Let me qualify that statement.  

I live in Massachusetts.  We are obligated to have health care.  If we cannot afford it, it will be afforded for us through Mass Health.  If it is not offered because we are part time or work for too small of a company, we can buy the often affordable Commonwealth Care.  Unfortunately, if we CAN afford it and it IS offered, we are forced to take it.  I’m glad for this because when my Lyme disease was in its early phases I was newly separated from my then-husband, working 30 hours for $10/hour and living with my mother because I couldn’t pay rent after childcare.  Talk about being the 99% ….

But if it wasn’t for Mass Health, my finances would be a shambles right now.  Or I might have solidified my denial – in the early days I was rationalizing my symptoms with “I’m getting older’ and “I have an energetic young boy and I’m a single mom and of COURSE I’m tired.”  If anything else could have talked me out of going to the doctor (and that could be just a few bucks), then I would have not gone I’m sure.  Some of those Lyme tests themselves can be a few hundred bucks – and let’s not touch the specialists and the doctor’s visits.  

So I’m thinking – what if I lived in California or New York or Alaska or anywhere else?  What if I was in that financial situation where my job did NOT offer insurance because they were small or because I didn’t work enough hours or I didn’t work there long enough or some other thing?  Massachusetts offers Safety Net if you get a job that offers insurance after a 3-month period or whatever the magic month is.  It didn’t get me into the doctor’s office, but if I was hit by a car or some other tragic and unforeseen circumstance then it wouldn’t have ruined me financially.  

With this in mind, why are people SO against the government giving us another option?  Why can big wig CEO’s in companies pay the same rates that the most fortunate of us can pay when other people are struggling, trying to scrape together money for their baby’s Ibuprofen because they have a fever?  Why are the top dogs with the top dollars treating their aging rich wives to plastic surgery while everyday people are shirking their responsibilities to themselves and their families to seek preventive medical help with an annual physical?  Why are the richest of the rich lounging in spas and getting their pores sucked clean with mud while the working class winds up with cancer because it wasn’t caught in time?  

I’m lucky.  I’m damned lucky.  Thank you, Massachusetts, for the healthcare.  I keep thinking where I would be right now if I had let it go longer.  

I had a rough patch last week with the exhaustion and pain.  Today the walk upstairs isn’t such a long walk.  I worked from 9:30 this morning until 6:30 tonight, cooked dinner, cleaned the kitchen up after, went to an AA meeting, and here I sit.  Thank God.  Thank God.  

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The 99% – Occupy Lyme Disease

I was thinking about the whole “we are the 99%” thingy.  This blog is based on my chronic illness:  chronic Lyme disease.  In the past year period, I have been bounced from health insurance policy to health insurance policy like four times.  I’m again in “deductible” land and I haven’t finished paying off my specialist for my last visit due to a deductible.  Mercifully my co-pays on my meds are manageable.  

My symptoms have been up and down and there have been some changes that make me think I ought to see the doctor again. I don’t know if Lyme has upped the ante or if there’s something new to concern myself with.  Lyme disease has shown me it is like a house of cards with causing auto-immune things.  From a strange sensation in my feet akin to jumping burning embers to the pressure in my head to the sudden changes in eyesight throughout the day to episodic incontinence …. I am worried.  I have a $500 deductible and Christmas is coming.  My bout with unemployment this summer set me back a little bit with my savings.  I can keep my head above water, but this fork in the road with my health and finances makes me think of other people in other states.  

Let me qualify that statement.  

I live in Massachusetts.  We are obligated to have health care.  If we cannot afford it, it will be afforded for us through Mass Health.  If it is not offered because we are part time or work for too small of a company, we can buy the often affordable Commonwealth Care.  Unfortunately, if we CAN afford it and it IS offered, we are forced to take it.  I’m glad for this because when my Lyme disease was in its early phases I was newly separated from my then-husband, working 30 hours for $10/hour and living with my mother because I couldn’t pay rent after childcare.  Talk about being the 99% ….

But if it wasn’t for Mass Health, my finances would be a shambles right now.  Or I might have solidified my denial – in the early days I was rationalizing my symptoms with “I’m getting older’ and “I have an energetic young boy and I’m a single mom and of COURSE I’m tired.”  If anything else could have talked me out of going to the doctor (and that could be just a few bucks), then I would have not gone I’m sure.  Some of those Lyme tests themselves can be a few hundred bucks – and let’s not touch the specialists and the doctor’s visits.  

So I’m thinking – what if I lived in California or New York or Alaska or anywhere else?  What if I was in that financial situation where my job did NOT offer insurance because they were small or because I didn’t work enough hours or I didn’t work there long enough or some other thing?  Massachusetts offers Safety Net if you get a job that offers insurance after a 3-month period or whatever the magic month is.  It didn’t get me into the doctor’s office, but if I was hit by a car or some other tragic and unforeseen circumstance then it wouldn’t have ruined me financially.  

With this in mind, why are people SO against the government giving us another option?  Why can big wig CEO’s in companies pay the same rates that the most fortunate of us can pay when other people are struggling, trying to scrape together money for their baby’s Ibuprofen because they have a fever?  Why are the top dogs with the top dollars treating their aging rich wives to plastic surgery while everyday people are shirking their responsibilities to themselves and their families to seek preventive medical help with an annual physical?  Why are the richest of the rich lounging in spas and getting their pores sucked clean with mud while the working class winds up with cancer because it wasn’t caught in time?  

I’m lucky.  I’m damned lucky.  Thank you, Massachusetts, for the healthcare.  I keep thinking where I would be right now if I had let it go longer.  

I had a rough patch last week with the exhaustion and pain.  Today the walk upstairs isn’t such a long walk.  I worked from 9:30 this morning until 6:30 tonight, cooked dinner, cleaned the kitchen up after, went to an AA meeting, and here I sit.  Thank God.  Thank God.  

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Recipes & Hints: Lyme & 17-Day Diet

(*If you haven’t read my other posts about the 17 diet, you may be wondering what it has to do with lyme disease. The short answer is that it’s increasing my energy level, I’ve wanted to get rid of the excess weight I’ve gained from the antibiotics and doing less activities, it’s helping my thyroid I think, and countless other things*)

The first cycle of the 17-day diet is rather monotonous. The meats I’m allowed are basically fish, eggs, chicken breast, turkey. PERIOD. I like chicken – but to eat it EVERY day? Psssh! And I could live without turkey. I eat it on Thanksgiving and am happy with it, but never ever buy it. I like eggs … particularly omelettes with cheese and stuff that I CAN’T have!!! I hate fish. They can all just swim away from me.

Sooooo …………

I needed to make this more interesting.

Dr. Mike recommends a tablespoon of olive oil/day. I’ve been sauteeing veggies in it and adding chicken. A couple of dreamy things I’ve discovered:

Chicken & Broccoli:
Mix together:
Olive oil and red wine vinegar
Add himalayan salt – a good dash
Add cracked peppercorn – a good dash
Tablespoon of oregano
Tablespoon of lemon juice
2 Tablespoons fat free parmesan

Warm up cooked, diced chicken breast in this. When it’s starting to warm up substantially (or if you want it browned, etc.), add fresh broccoli and cover to steam the broccoli.

THIS is awesome.

Strange Stirfry:
Sautee diced celery & red onions in olive oil with fresh garlic and oregano. Add a dash of himalayan salt and cracked peppercorns.
When cooked a little, add sliced tomatoes and cover.
When the tomatoes’ juice is reddening the olive oil, add diced chicken.
When the juices from the tomatoes seem to be drying up, add soy sauce.
This is a peculiar combination, but it’s wonderful. I assure you!

To Make Your Life Easier:
Broil chicken breasts in bulk and store in the fridge. Broil them for 10 minutes on each side (ensure the juices are running clear and there’s no pink inside).

Craving Sweets/Carbs?
One thing that helped me tremendously was having some fruit if a craving came on.

Another thing is the probiotic snack they suggest. The book states you can have sugarless yogurt; it is suggested you buy plain yogurt and add unsweetened preserves/jelly to it. I tried this and used Polaner All Fruit. It’s AMAZING and it curbs the cravings.

The book is right about eating regularly scheduled meals/snacks and not letting yourself get hungry.

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When Pain Shows….

Grarrrrr! I hate it when I’m gimpy. I hate it when my pain is noticeable.

Then comes the paradox – I love that people care enough to ask if I’m okay or what’s wrong, but I hate people noticing my pain. I bristle at the sympathy.

I went to see Stone Temple Pilots in Hampton Beach, NH recently and it was “general admission.” Nowhere to sit. I sat on the floor during the opening acts, knowing that my knees would hate me halfway through the main event.

Being hot in there, the bouncers opened the door. I could smell the ocean across the street and feel the cool damp air. It felt great at first and the air quality was wonderful to breathe.

After a while, my knees started to rebel. I alternated the weight of my body on each knee, trying to give each of them a much-needed break.

The sea air …. the sea air and standing…. woof.

By the end of the show, I was limping. Going down the stairs was a painstaking event. Gimping the three blocks to where we parked was embarrassing.

I think my pride hurt worse than my body. In fact, I know it did.

Maybe this is why my symptoms are coming and going. I have more “work” to do on myself. The inside self …. a part of me that anti-inflammatories can’t touch.

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