Bloody Lymey

A Blog About Living with Lyme Disease

About Bloody Lymey

I’m a New England lady – and not a doctor or medical professional – who has found the need to vent about what the past few years with lyme disease have looked like. That is my sole intent. I am not here to give medical advice, though sometimes I mention things that have worked for me. Sometimes I publish information I have found on the web – but only if it seems to be well-supported by facts and only if it seems to be fairly accepted.

Some entries may seem so entirely unrelated to lyme disease, but having had it has changed my world view. It seems to enhance and/or taint my life experiences and how I view things. It’s sometimes like an ugly exboyfriend that I compare the new ones to. It’s sometimes like a kind exboyfriend that has given me life lessons and even though it didn’t “work out,” he’ll always have a special place in my life and continue to be appreciated. Lyme disease gives me lots of life lessons and different perspectives.

Another thing to know is that I’m a recovering alcoholic and sometimes my experience with that and my participation in AA plays into my outlook on things. It’s also why I’m leaving my name out and am not publishing any pictures of myself. Anonymity. I’ve opted to be more honest and candid in my writing rather than reveal too much about who I am.

Frankly? I don’t really expect anyone to be terribly interested in this. If someone identifies with it and I meet some kindred spirits, then that would be wonderful. If it helps educate someone and it makes them more aware of ticks and the sometimes consequences of their suckling … then that would be awesome. But I don’t expect any of that. I expect to vent, send it out to the universe and let it go.

As for more about me: I have a wonderful son, a boyfriend I adore, a job in human services that makes me feel like I’m “giving back” …. life is good. As long as my attitude is good.

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Now that I have told you why I’m here …. why don’t you tell me why you’re here?


14 responses to “About Bloody Lymey

  1. healthdemystified says:

    Hey Becki,

    I just featured you in my latest post:

    http://healthdemystified.wordpress.com/2012/05/24/the-three-words-that-changed-my-life-thanksgiving-thursdays-week-8/

    Thanks for your support,

    Eric

  2. Mike says:

    There is a Lyme petition at the following address:
    https://petitions.whitehouse.gov/petition/reform-infectious-disease-society-america-treatment-guidelines-lyme-disease/Pj9jG0pX

    The petition will only be up until 2/10/13, and we need 25,000 signatures for the White House to review and respond.

    This is the best chance for raising Lyme awareness I have seen, so please spread the word!

  3. Cristin Reyes says:

    I have had Lyme for one year but was just properly diagnosed. My main symptom is weight gain. I have gained a lot and cannot lose. Has anyone had success at treatment?

  4. Cristin Reyes says:

    Does anyone have suggestions for all the weight gain from Lyme? It will not come off. I eat a very clean diet.

    • Becki says:

      Cristin, my specialist seemed to think that my Lyme Disease gave me Hashimoto’s / hypothyroid . She said that the hormones the thyroid uses are something my confused with the Lyme bacteria and attacked it as such. Did your doctor do a thyroid test? Ask your doctor to do the antibody test. My hormone levels looked good, but my antibodies were through the roof. I still struggle with weight unless I really am strict about carbs and sugar. I’d welcome anyone else’s input. Good luck, Cristin.

      • T says:

        This is very interest connection you brought up here: Hashimoto and Lyme. Thank you for this.
        Regarding clean diet- I am curious between food might cause allergic reaction and the person’s digestion system when his/her system is suffering from Lyme. If Lyme can mess up thyroid function, it is not strange to think that that can cause trouble in digesting system as well. If that is a possibility, then staying away from wheat, milk might be a good idea. Some said the adult do not have an abilty to digest milk anyway. This is just a thought.
        T.

      • Becki says:

        Very interesting observations about food allergies. I have a feeling that they’re going to find out a lot more about the impact of wheat on us. I think gluten may not quite be it. But I have a feeling there is something incidental. I was reading recently about histamine and the diet. Very interesting stuff. I’m not sure I am well-versed enough about it to make a post regarding it but I’m gathering information. I never knew that histamine was something that naturally occurs in food and if we eat certain foods that contain histamine and wheat is one of them then we produce antihistamines and have auto immune reactions to certain foods.

  5. T says:

    Who is the best Dr in the Berkshire for Lyme treatment?
    Any thought?
    T

    • Becki says:

      T,

      Hi there! I do not have a lot of experience with Berkshire Lyme treatment. I had to go to someone in Longmeadow, MA. I have mixed feelings about the experience because my PCP did not agree with the long duration of the antibiotics. I didn’t feel like the antibiotics cured my condition (though I did “herx,” a testament to their effectiveness), but I do have terrible gut problems now and I have no doubt it’s a consequence of the high dose and long durations of being on antibiotics (I lost count after 18 months).

      But I would welcome anyone else’s input ……. readers from the Berkshires or a little further afield?

      Becki

  6. Alex Granados says:

    Hi. Would like to send you a preview of book by Dr. Bill Rawls on his journey with Lyme Disease for possible consideration to write about on your blog. Do you have an e-mail where I can contact you? Or contact me at my e-mail. Thanks!

    By the way, I also consider Bill W. a friend.

    Alex

    • Becki says:

      Alex, thank you for the interest. I encourage my readers to read everything they can, including Dr. Rawls’ book. Sounds particularly interesting as it is written by a man who is both doctor and patient. Best wishes. Glad you’re friends with Bill W. as well. ❤ Becki

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