Bloody Lymey

A Blog About Living with Lyme Disease

Lyme Bill Blitz: NY & MA 2014

on July 3, 2014

Dear Friends,

The following messages contain information on how you can help bring two very important bills into law. Both bills, one in MA and one in NY, protect treatment options for Lyme patients. The Massachusetts bill will require insurance companies to pay for long-term treatment for Lyme disease. The New York bill will help to protect our LLMDs from unwarranted investigation by the NYS Office of Professional MisConduct.
Together we can make a difference!
Karla
**THE LYME BILL BLITZ**

Huge Victory

& A NEW CALL TO ACTION!

Massachusetts Bill H.4142

The Lyme Disease Patient Protection Bill Needs your Help!

Great News!!! H.4142 has been reported out of the Joint Committee of Healthcare Financing and is currently before the House of Representatives.

You made the difference. YOUR CALLS, E-MAILS, & VISITS have helped push H.4142 through the JCHCF committee and into the House!

We need YOU to continue to CALL, VISIT, and/or E-MAIL! Please contact your local State Representative and ask them to vote in favor of H.4142 including language changes recommended by the MA Lyme Legislative Task Force. 

To find your Representative go tohttps://malegislature.gov/People/FindMyLegislator PLEASE CALL NOW!!!

This is the Homestretch, this is the time when we are all needed. Representatives have told us that they need our Lyme community’s help. We need to keep the pressure on, so they have the political capital to get this passed!

Together we can make a difference!

Thank you,

The Massachusetts Lyme Legislative Task Force
Helen Brown – Whitman
Donna Castle – Groton
Janice Dey – Westport
Susan Fairbank-Pitzer – Danvers
Sharon Hawkes, MLIS – Lenox
Jayme Kulesz – Groton
Trish McCleary – Sturbridge
Sheila Statlender, Ph.D. – Framingham
Michelle Treseler – Newton

NEWS: Getting your Lyme message to Gov. Cuomo
26th June 2014

Share this link with your Facebook friends!

 http://lymedisease.org/news/lyme_disease_views/news-getting-your-lyme-message-to-gov-cuomo.html#sthash.JsNv8mJZ.dpuf

Special link for NY residents to ask Gov. Cuomo to sign Lyme doctor protection bill. Other contact options for those outside of New York.

NY State residents:

Even if you have already contacted or intend to contact Governor Cuomo via phone call or personal letter, we are requesting that all New York State residents use this link (in addition) to contact the Governor and urge him to sign S7854-A7558B. Please add a personal note concerning how Lyme disease has affected you or your friends, family, and neighbors to the beginning of the letter.

https://www.votervoice.net/NYSCOALITION/Campaigns/36501/Respond

Using the votervoice site helps the NYS Coalition for Lyme and Tick-borne Diseases to document how many requests Governor Cuomo has received from NYS residents.
.
People who don’t live in New York:


Non-NYS residents can use the contact information below to call or write Governor Cuomo and urge him to sign S7854-A7558B. The votervoice link will not work for non-NYS residents but it does contain a sample letter that users can copy and paste as part of their individual letters.
.
The Honorable Andrew M. Cuomo
Governor of New York State
NYS State Capitol Building
Albany, NY 12224
(518) 474-8390
.
http://www.governor.ny.gov/contact/GovernorContactForm.php
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Bill S7854-A7558B – Prohibits the investigation of any claim of medical professional misconduct based solely on treatment that is not universally accepted by the medical profession:
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http://open.nysenate.gov/legislation/bill/S7854-2013
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In addition to this legislation, the NYS Senate’s Lyme Disease Task Force recently released its report. Read more here:
The Press Release and Report by the NYS Senate State Lyme Disease Task Force is astounding in its breath of important initiatives proposed for combating this scourge, including adopting “a resolution calling on the Centers for Disease Control to reevaluate its guidance on Lyme and other tick-borne diseases and for the National Institutes of Health, the Department of Defense, and other federal agencies to provide more funding for these diseases.”  I am posting links to both below.

Our work is just beginning to hold the NYS legislature to its commitment on these important initiatives, including addressing insurance denials and the need to update our physicians on important new research, such as evidence that supports persistence of infection and polymicrobial infection as reason that many patients remain ill after short-term treatment.

One particular interest of mine is the fact that many of the innovative new tests that are available to Lyme patients in all of the other 50 states are denied to NYS residents. As a result of this short-sighted policy, I had to go out-of-state to get many important tests that helped our physicians to properly diagnose and treat the multiple tick-borne illnesses affecting my family members. The Task Force Report recommends that “the Department of Health re-evaluate the tests and facilities it authorizes for Lyme and other Tick-Borne diseases in order to help facilitate earlier diagnoses, and better outcomes, across the State.”

New Task Force Report & Recommendations to Address Lyme and Tick-Borne Diseases
Posted by Majority Press on Wednesday, June 18th, 2014

http://www.nysenate.gov/press-release/senate-releases-task-force-report-recommendations-address-lyme-and-tick-borne-diseases

Report from the Senate Majority Coalition Task Force On Lyme and Tick-Borne Diseases          

http://www.nysenate.gov/files/pdfs/2014_LYME_task_force_report_0.pdf

– See more at: http://lymedisease.org/news/lyme_disease_views/news-getting-your-lyme-message-to-gov-cuomo.html#sthash.JsNv8mJZ.dpuf


One response to “Lyme Bill Blitz: NY & MA 2014

  1. Becki says:

    Cameron, Thank you for your comment. I’m not going to publish it because your email address is in it. I get SCADS of spammers here and want to protect you from junk mail. You said you had a question and I’d love to help if possible. Please post your question here without your email address. Maybe if I don’t know the answer to your question then another reader might.

    Take care and hope this finds you feeling well.

    Becki

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