I found (via Lyme Disease One Day at a Time on Facebook) the best article to explain how it feels to live with a chronic illness. If you find yourself at a loss as to how to explain how you’re feeling to friends and family or what it’s like to live the way you do then this analogy is a memorable one:
if the link fails then copy and paste: http://www.butyoudontlooksick.com/articles/written-by-christine/the-spoon-theory/
Today I have probably fifteen spoons. I’m lucky.