Bloody Lymey

A Blog About Living with Lyme Disease

Public Forum for Lyme: Saratoga Springs, NY May 21st

on April 21, 2012

There is a public forum with multiple topics having to do with Lyme Disease. It’s in Saratoga Springs, NY. If you’re anywhere near the area, it sounds like an informative and productive forum. I would love to go – will have to see if I’m too tired [wink].

The following is a newsletter I received from Kenneth Mercure (of Lyme Alliance in the Berkshires):

“”Congressman Gibson is pleased to announce that he will be hosting a unique public forum focusing on exploring solutions to the myriad of challenges relating to Lyme disease and other tick-borne diseases.”

May 21, 2012 at Skidmore College in Saratoga Springs, New York.

Presenters include:

Pamela Weintraub, renowned author of Cure Unknown, and Executive Editor of Discover Magazine, will be the keynote speaker for this event. Pam will speak to the multi-dimensional nature of this extraordinary subject, from the patients to the politics, from the science to suppositions that define this stunning medical debacle.

Dr. Richard Horowitz, internationally renowned physician and consultant in the field of Lyme and tick-borne diseases has been working with patients for over twenty years. He has seen the evolution of the diseases from the clinical perspective, and will present a proposal for a paradigm-shifting approach to the diseases that could encourage new perspectives, new synergies, and new research in this difficult subject.

Lorraine Johnson, one of the best known and most highly regarded advocates for Lyme patients, is an attorney advocate on issues related to the medico-legal and ethical aspects of Lyme disease and has published over 30 peer-reviewed articles on this topic. She is the Chief Executive Officer of LymeDisease.org, and is a director and an officer of the International Lyme and Associated Diseases Society. She will speak on the Burden of Illness, an in-depth study of what the costs are to people who have Lyme and other tick-borne diseases and to their communities, and she will recommend research paths forward to address these issues.

Dr. Daniel Cameron, former President of the International Lyme and Associated Diseases Society, an active clinical physician, researcher, and advocate for improved Lyme policy in the US, will speak to the extreme difficulties the current medical-political environment imposes on physicians who aggressively treat Lyme Disease.

Holly Ahern, Associate Professor of Microbiology at SUNY Adirondack, will present the findings of her 2011 research study on the number of cases of Lyme disease that go uncounted in our “official” statistics. Most cases of Lyme disease are NOT reported, and this number of “invisible” cases, will ultimately have a significant impact on all our communities.

Dr. David Leiby, head of Transmissable Diseases at the American Red Cross, will speak on the concerning and challenging issue of Babesiosis now bering found in the blood supply.

Dr. Ahmed Kilani, President of Clongen Labs, will discuss new laboratory methods to enhance the detection sensitivity in the testing process.

Dr. Kenneth Liegner, is a Board Certified Internist with additional training in Pathology and Critical Care Medicine. He has been actively involved in diagnosis and treatment of Lyme disease and related disorders since 1988. Dr. Liegner will present his ideas for a comprehensive plan for dealing with the spectrum of problems that are the “Lyme issue” as we move into the future.

Dr. Edward Breitschwerdt, DVM, will discuss the emerging challenges of Bartonella, a co-infection that is being observed with increasing frequency.

For more information and/or to pre-register go to:

http://www.lymenext.org


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